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To make what could be a LONG story LONGER I will cut to the chase; Keegan has brain cancer, or Medulloblastoma if you want to be specific. There I said it. Although the terms and percentages associated with this type of cancer still scare the heck out of me, we have come a long way. It all started back in April '10, although this can possibly be traced back to utero, but that is another story for another day.
We were sent to Riley for an evaluation because a CT we had done at home showed that there was fluid collecting on Keegan's brain otherwise known as Hydrocephalus. On April 15th we had our first brain surgery to install a shunt to drain the excess fluid. We went back to see our Neurosurgeon for a 2 week follow up after surgery and got the all clear "see you in 6 months". This is where our lives started to spiral out of control and far beyond anything we could EVER fathom.
Since then we have tried to make the absolute best out of the horrible situation we have been dealt. I think we value each day, love him that much more, and each milestone is a little more special knowing that even though our son's primary tumor was removed back in May, Keegan is still fighting the fight of his life and doing it like a champ.
He is our little fighter, our oncologist told me that he is pretty sure he should not have made it out of the first trimester because of all his genetic abnormalities. We are still pretty far behind developmentally. We are working hard every day though, hopefully soon he will be able to crawl and eventually stand and progress to walking. I am not pushing anything, we don't take any time for granted but know that Keegan will develop and flourish in his own time. He is the love of our lives and even though he is not like other babies, he is our baby and we love him more than life itself.
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